Love Never Sinks

Lesch-Nyhan Syndrome is an x-linked genetic disorder that is almost exclusively seen in boys. It is characterized by impaired kidney function, self-injurious behavior, and severe motor impairments. In spite of all the challenges associated with LNS, folks who meet boys with this condition are overwhelmingly drawn to them as they are still so often full of joy!

 We are so excited to participate in the Million Dollar Bike Ride this year!  We are dedicated to advancing treatment for those living with Lesch-Nyhan Syndrome through partnership with the Orphan Disease Center.  As Lesch-Nyhan Syndrome is such a rare disease, we are also so grateful for this opportunity to spread awareness.